Tutaki ki te roopu rangahau DEBRA UK
Takuta Sagair Hussain ka arahi i a maatau rangahau i DEBRA UK, neke atu i te 25 nga tau o te wheako ki te rangahau rongoa me te whakapau kaha ki te whakapai ake i te oranga o nga tangata e noho ana me te EB. He Tohu Paetahi i roto i te Molecular Biology, he MSc in Genetics, me te MBA Kaiwhakahaere, ka whakakotahi a Sagair i te tohungatanga putaiao me te tirohanga rautaki hei akiaki i nga huringa whai kiko.
I mua i tana urunga atu ki a DEBRA, i mahi ia hei Kaiwhakahaere Rangahau i te British Association of Dermatologists, i toa ai ia i te rangahau kiri puta noa i te UK. Ko tana mahi kua toro atu ki nga whare wananga rangatira, hangarau koiora, me te putaiao raraunga—ka hoatu ki a ia he tirohanga ahurei, auaha me pehea te huri i te puiao hou ki nga otinga o te ao.
I tua atu i tana mahi i DEBRA, Sagair Ko ia hoki te Hekeretari/Kaitiaki Taonga mo te Kaunihera Dermatology o Ingarani, i reira ka awhina ia ki te hanga i nga mahi rangahau me te tiaki kiri kiri puta noa i te motu.
Sagair he ngakau nui ki te whakarite ka puta te rangahau ki te tino paanga—nga maimoatanga pai ake, pai ake te tiaki, me te mutunga, he rongoa mo te EB.
Takuta Abi Witherden kei te whakahaere i a maatau mahi rangahau mo te whakawhiwhi tahua i DEBRA. Mai i te wa tuatahi o te rangahau i te wa o tana tohu paetahi i te Whare Wananga o Cambridge, na roto i te Tohu Paetahi i te Kareti Imperial me te tekau tau o te rangahau koiora rapoi i roto i nga Whare Wananga o Raanana, Abi he nui te wheako me te mohio ki te rangahau matauranga ki a DEBRA.
I mua i te whakauru ki DEBRA, Abi e ono tau ki te tohe i te whai waahi o te hunga manawanui ki roto i te NHS. Ko ia te heamana o te South Tees Maternity Voices Partnership i te wa o te mate COVID-19 me te tohu i te reo kaiwhakamahi ratonga puta noa i te Rawhiti o Ingarangi mo te Rawhiti ki te Rawhiti me te Rawhiti Cumbria Local Maternity and Neonatal System.
Abi e tino u ana ki te whakapumau i te rangahau EB e tuku hua tino kitea ki nga tangata e tino hiahia ana. Kei te kaingākau ia ki te whakarongo me te whakanui i nga reo o nga whanau e noho tahi ana me EB, me te whakarite ma o raatau wheako e hanga me te akiaki i nga kaupapa rangahau a DEBRA.