Nga hononga rangatōpū
A corporate partnership with DEBRA is more than philanthropy. It’s a powerful collaboration that delivers real benefits for your business while transforming lives. Together, we can provide vital support for people living with Epidermolysis Bullosa (EB) today and fund groundbreaking research that brings hope for a better tomorrow.
By partnering with us, your company can:
- Drive social impact by helping us improve care and quality of life for those affected by EB.
- Support innovation through rangahau that aims to find effective treatments and, ultimately, a cure.
- Whakanuia to ingoa tohu by aligning with a cause that inspires employees, customers, and stakeholders.
- Engage your teams mā te whai tikanga fundraising and volunteering nga whai wāhitanga.
Join us in creating a world where no one suffers with EB.
Tikiake i a maatau panui hononga umanga
Tena koa whakapā atu ki a Ann Avarne, Kaiwhakahaere Pakihi Kamupene, mo etahi atu korero.
"Ko te mea kino rawa atu mo te EB ko te mamae. He mea whakamiharo te mamae, ko te mamae o ia ra e kore e ngaro. Katahi ano te patito. I etahi ra karekau he patito, a, i etahi wa he ra e kore e taea e au te whakamutu i te patito. Ko te marumaru o toku kiri, ko te whakakotahitanga o oku maihao, me te paheketanga o taku kiri kiri ka piki ake i te wa e pakeke haere ana ahau ka uaua ake te ora mo au. Koinei te take e hiahia ana ahau ki nga maimoatanga tarukino whai hua me te mutunga he rongoa mo te EB.
Fazeel Irfan, 17 tau
E noho ana me te dystrophic epidermolysis bullosa (RDEB)
Ka taea e to kamupene te whai waahi ka waiho hei rereketanga mo EB
Ko te tuku rangatōpū i te tuatahi ka tino kitea, ka kitea he rereketanga ma te tuku putea matua mo nga waahi e wha e tino nui ana ki nga tangata e noho ana me te EB.
Ko te rangahau paionia tae atu ki te whakangao ki nga kaupapa whakangao tarukino e whai ana kia mau nga rongoa rongoa mo ia momo EB.
Te manaaki me te tautoko ki te whakapai ake i te oranga o te tangata takitahi me nga whanau e noho tahi ana me te EB.
Na roto i te urunga mema ki nga kaainga hararei DEBRA UK kei puta noa i te UK.
Ka mahi tahi a DEBRA UK me te NHS ki te tuku ratonga hauora EB.
He aha i teie nei?
"Kei te noho tatou i roto i te waa o te tino auahatanga putaiao me te rongoa, na te mea i whai waahi mo nga waahi mo nga mahi rangahau EB mo nga maimoatanga a meake nei, engari kei te hiahiatia enei maimoatanga inaianei; Kare e taea e nga turoro e noho ana me te EB te tatari, me kaha te whakahaere i nga tohu, te pai ake o te oranga, me te tino tumanako ka kitea he rongoa kare e roa. Ma to awhina ka taea e matou te whakatere i te tere me te whanui o a maatau rangahau mo nga maimoatanga me te mahi tahi ka taea e matou te whakatutuki i tenei haerenga whakahirahira me te tino nui ki te whakarereke i nga oranga me te whakamutu i nga mamae.
Tony Byrne, Tumuaki DEBRA UK
