I tūtohutia a Jim Irvine, te Heamana Kaitiaki o mua o DEBRA, mō te MBE
E harikoa ana mātou kua te Heamana o ngā Kaitiaki o mua, a Jim Irvine, e tūtohutia ana ki te Ariki, ki te Kīngi mō te Te Whakahonoretanga o te Mema o te Order of the British Empire (MBE) i roto i te Rārangi Whakahonore mō te Tau Hou 2026.
Kei roto i te tohu te whakamihi i ngā ratonga a Jim ki te hunga e noho tahi ana me epidermolysis bullosa (EB) i roto i nga tau 25 kua hipa.
I tae atu a Jim ki tētahi rā korowha a DEBRA, ā, i reira ia i ako tuatahi ai mō te EB. I pārekareka ia ki ngā mea i rangona e ia i taua rā, ā, mai i taua wā ka oati ia ki te mahi i ngā mea katoa e taea e ia hei āwhina i te whakapai ake i te kounga o te oranga mō te hunga e pāngia ana e ngā momo EB katoa.
I a ia e mahi tahi ana me DEBRA mō te wā roa, I mahi a Jim hei Kaitiaki, hei Kaiwhakahaere Putea, ā, mō ngā tau e ono kua hipa hei Heamana o ngā Kaitiaki, tae atu ki te whakatere i te rōpū aroha i te wā o te mate urutā COVID-19 o te ao.
I raro i te kaiārahi a Jim, kua nui ngā ahunga whakamua kua puta i roto i tā mātou haerenga ki tētahi ao kāore he tangata e mamae ana i te EB. Kua tino whanake haere tō mātou māramatanga whānui mō te EB, ā, kua whai rautaki rangahau mārama mātou e whakatairanga ana i te haumi ki te whakamahi anō i ngā rongoā. E kitea ana tēnei i roto i tā mātou panuitanga tata nei mō te putea tahi hei pupuri i te Kaupapa ART-EB, te haumitanga nui rawa atu tae noa ki tēnei wā, i hea atu i te ao, ki te rangahau EB.
He nui tonu ngā mahi engari Nā te tirohanga whānui me te kaiārahi a Jim, kua tata mai ngā maimoatanga whai hua mō te EB..
Mō te katoa o DEBRA, e hiahia ana mātou ki te whakawhānui i Ngā mihi nui ki a Jim mō āna mahi katoa hei tautoko i te hapori EB, me te mihi nui ki a ia mō tēnei tohu e tika ana..
I tana kōrero mō tēnei whakamihi, i mea a Jim:
"E harikoa ana ahau kua whakamihihia ahau mō taku mahi ki a DEBRA, engari e hiahia ana ahau ki te whakatapua i tēnei tohu ki te hapori EB."
He nui ngā mea i whakaaweawetia ai ahau e ngā whānau EB kua tūtaki ahau i ngā tau kua pahure ake nei, ā, kua miharo tonu ahau ki tō rātou ngākau māia. Ko te hunga e ora ana i roto i ngā wero o ia rā e pā ana ki te whai EB ko rātou te hunga e tika ana kia whakanuia, ā, e mihi ana ahau ki a rātou mō ngā mea katoa i whakaakona mai e rātou ki ahau i roto i ngā tau 25 kua pahure ake nei.
"Ahakoa kua roa te ara kua haerea e tātou, he nui tonu ngā mahi kei mua i a tātou. Kei te tumanako ahau ki te āwhina i te whawhai tonu i ngā huarahi katoa e taea ai e au."